| Location | Caerphilly |
| Age | 6 years |
| Date of Birth | 12/1999 |
| Date of Death | 4/2006 |
| Visitors | 1,175 since 09/07/2006 |
| Creator |
Mobius Syndrome
Mobius syndrome, a rare genetic disorder characterized by facial paralysis, is caused by the absence
or underdevelopment of the 6th and 7th cranial nerves. These nerves control eye movements and facial
expression.
In newborns, the first symptom is an inability to suck. Excessive drooling and strabismus (crossed
eyes) may occur. Other symptoms may include lack of facial expression; inability to smile; feeding,
swallowing, and choking problems; eye sensitivity; motor delays; high or cleft palate; hearing
problems; and speech difficulties. Deformities of the tongue, jaw, and limbs, such as club foot and
missing or webbed fingers, may also occur.
Most patients have low muscle tone, especially in the upper body. Mental retardation may also occur.
As children get older, lack of facial expression and inability to smile become the dominant visible
symptoms.
Mobius syndrome may be accompanied by Pierre Robin syndrome, a disease in which there is an
abnormally small jaw, downward displacement of the tongue, and a soft, cleft palate. It may also be
accompanied by Poland's anomaly, a disease characterized by abnormal development of one side of
the chest and limb deformities.
There is no specific course of treatment for Mobius syndrome. Treatment is supportive and
symptomatic. Infants may require feeding tubes or special bottles to maintain sufficient nutrition.
Surgery may correct strabismus and improve limb and jaw deformities. Physical and speech therapy may
improve motor skills and coordination, and help to better control speaking and eating abilities.
Plastic reconstructive surgery may be beneficial in some individuals. Also, in a few cases, nerve
and muscle transfers (microvascular muscle transplant) to the corners of the mouth have been
performed to provide some ability to smile.
There is no cure for Mobius syndrome. With proper care and treatment many individuals have normal
life expectancy, in spite of the severe impairments that characterize the disorder.
rhys was a loveing little boy .and a loveing son to have and a little angle to everyone he was loved
by loads of people .and his brother ryan misses him so much . R.I.P MY SON MISS YOU ALLWAYS MUM +
DAD + BROTHER RYAN XXXX SEE YOU SOON MY LITTLE ANGEL
NAN _ GRANCHER LLEWELLYN MISS YOU SO MUCH
XXXX
love to you and your mammy&daddy always love ann&adam and angel kimberly ann xxxxxxxxxxxxxxxx
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Hello sweetie
How r u hunny, did you eat all those eater eggs hey hope u didnt make yourself sick, Mummy never told me about your site scally isnt she, your mummy loves you so so much and misses you loads , Watch over her hun. Ps give Macy kisses for me.
loveing son rhys
hiya rhys how are u babe
dad had a good birthday he was 33 :)
hope u are looking after your self
and your other little friends
hope you are happy running around in the lovley gardens with all the other little angels with you miss you son . and your brother ryan xxxx
for you rhys
You are my sunshine
My little sunshine.
You make me happy
When skies are gray.
You'll never know, dear,
How much I love you.
Please don't take my sunshine away
The other night, dear,
While I lay sleeping
I dreamed I held you in my arms.
When I awoke, dear,
I was mistaken
So I hung my head and cried.
baby miss you so much
hiya babe . hope you are keeping your self well . i bet you are doing things you have never done before . bet its nice for you to do so many thing for your self . hope you are keeping your self well . hope you are running about in the little clouds . with all your friends .xxxxx every days a sad day im trying my best as i will think of you for ever. as allways in my heart . hope you are not chaseing all the little girls :) sweet dreams xx ill be down in the week to sort more flowers for you . take care sweey pie love mum and ryan xxxxxxx
my son rhys
They say memories are golden, well maybe that is true.
I never wanted memories, I only wanted you.
A million times I needed you, a million times I cried.
If love alone could have saved you, you never would have died.
In life I loved you dearly, in death I love you still.
In my heart you hold a place no one could ever fill.
If tears could build a stairway and heartache make a lane,
I'd walk the path to heaven and bring you back again.
Our family chain is broken, and nothing seems the same.
But as we are called one by one, the chain will link again
miss you so much
The worst feeling in the world
Is NOT feeling your touch
"I miss you like crazy"
I love you so much ,rhys
The most deafening silence
Is NOT getting to hear your voice
I want us to be together
But we have no choice
The most painful heartache
Is caused by my worries
Are you thinking of me too?
Does my face seem kind of blurry?
Are you starting to forget "us"
Or trying to remember?
"I miss you like crazy"
I'll love you forever!!
love mum & dad and brother ryan
hope all the little angels are looking after you babe xxxx
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